Having been at her home when she and her hubby got the confirmation from the amnio, I can affirm that it was one of those moments when the earth kind of stopped moving for a few seconds. The air was completely sucked out and there were no words that could change anything. [Tangent: As I know, genetics aren't something that you cure with prayer or good tidings, they simply are what they are and all you can do is make the choice of how you deal with them.] Everything that they expected was now totally different and suddenly their life got a whole new set of challenges.
|care of Safety Third's etsy shop|
Only the things that were the most scary were people's responses. [Tangent: Either as someone with a disability or as someone who loves someone with a disability will confirm, people say awkward things when they don't know what to say. Whether they overly sugarcoat or are overly dour- these things will happen, so you pretty much have to go into these things with no expectations.] . Luckily, so far no one has completely stuck their foot in their mouth to the point of no return. Everyone in the facebook thread is super supportive and encouraging of my friends as they should be.
|from the National Down Syndrome Coalition|
Although I find it bizarre that everything has to be made public now in social media in order to make things official. [Tangent: I know, as a blogger and person that lives on social media...that's a bold statement to make.]. I also find it incredibly refreshing. When I was born, I was a genetic surprise and there was no information superhighway to connect people to offer support and clear the air on things. It would have been much easier if my mom or dad had a profile in the early 80s where just once they could say, "Yes. My daughter has a disability and we are totally cool with it." instead of breaking the news one by one to people in their lives or having to constantly be met with surprised looks.
It's a strange world we live in now and I can't wait to welcome my sweet new "niece", Claire, into it. She's gonna be awesome. [Tangent: Please control me from buying every onesie in this post!]